Empowering people with PNH to live their best lives.
We're a 🇨🇦 Canadian non-profit organization connecting the paroxysmal nocturnal hemoglobinuria (PNH) community through advocacy, education, and peer support.
Real stories from our community
Read Ellie B's story
PNH entered my life as an unwelcome diagnosis, but it taught me something profound: strength wears many uniforms. The one on my back as an officer, the invisible one I wear as a mother, and the resilient one I carry as a patient—all are possible to wear simultaneously.
Read Olivia O's story
Every chapter of my PNH story has been uniquely challenging. Through the years, I've learned to adjust, listen to my body, and also appreciate where I am.
Read Kim M's story
Life doesn't end with PNH. With the proper treatment and mindset, it can still be exactly what you want it to be.
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