Better living with PNH
Discover a holistic approach to improving your wellbeing with the Better Living with PNH Guide! By signing up, you will get curated articles on a bi-weekly basis, unlocking tips and tools to help you in your new chapter with PNH.
Living with PNH
At a glance
What you need to know about PNH
- Start your journey strong by staying informed and getting to know your disease, PNH
- Check out tools to help you understand the basics, your symptoms and treatments
Overcoming physical, psychological and emotional challenges
- Learn from the experience of others like Mark Brennan - an inspiring story about learning to live your best life with PNH
- See this week's tools about travelling, planning and talking to your doctor
Making dynamic walking part of your routine
- Get practical advice for gradual fitness from Nathalie Lambert – an author and former Canadian Olympian in short-track speed skating
- See this week's tools to help you practice this walking technique
Expert nutrition advice
- Hear nutritional advice from Vanessa Perrone, who is a registered dietician and clinical director of MotiveNutrition
- See this week's tools to help you plan and keep track of your meals
Cultivating inner calm with yoga
- Learn the art of maintaining inner calm and a peace of mind with Barrie Risman
- See different management tools to help reduce your anxiety and stress
Related topics
Living a healthy lifestyle
Get guidance on eating well, staying active, conserving energy, and reaching out for support to help manage life with PNH.
Patient stories
Hear real experiences from individuals with PNH and learn how they cope, thrive, and stay supported.
Resources for your PNH journey
Sign up for our newsletter and discover other Canadian and international PNH organizations.