PNH Exploration Tools
Resources
Doctor discussion guide
Use this guide to keep track of your symptoms, record important reminders, and ask your most pressing questions, so you can make the most out of your conversations with your healthcare team.
Download guideCoverage options guide
Looking for quick information on coverage? Check out this summary on the provincial coverage for the PNH medications SOLIRIS®, ULTOMIRIS®, EMPAVELI®, VOYDEYA™ and FABHALTA®, in Canada.
Download guidePatient organizations for PNH
Organization | |
|---|---|
Canada | |
 | Canadian Association of PNH Patients |
 | Aplastic Anemia & Myelodysplasia Association of Canada (AAMAC) |
 | Canadian Organization for Rare Disorders (CORD) |
 | Le Regroupement Québécois des Maladies Orphelines (RQMO) |
 | Canadian PNH Network – for healthcare professionals |
United States | |
 | National Organization for Rare Disorders (NORD) |
 | The Aplastic Anemia and MDS International Foundation (AA&MDSIF) |
Canadian organizations
International organizations
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