Living a healthy lifestyle
Living with PNH
How to make your every day with PNH a little easier
Eat well
Experts recommend eating a well-balanced diet rich in fruits and vegetables, while also avoiding highly processed food.
Stay hydrated
Drinking lots of water to avoid blood clots.
Get adequate exercise
Physical exercise can help improve your overall well-being. Make sure to work with your doctor to create an exercise routine that is best for you.
Keep an eye on your energy levels
Each person can experience fatigue or low energy levels differently. All the same, it is important to identify the activities that drain you and those that spark you with joy. This way, you can learn how to conserve your energy and make time for things that fulfill you.
Take the right medications
Taking the right medications on time can help manage your symptoms and expand your physical capabilities.
Reach out
Opening up to your family and friends can help them understand you more so they know how they can be of help.
Tips for eating well
While there is no special diet designed to reduce PNH symptoms, it is crucial to maintain proper nutrition and dietary habits. Here are some tips you can follow:
- Focus on having a healthy, well-balanced diet with lots of fruits and vegetables
- These foods contain essential nutrients like folate and iron, which help to support healthy red blood cell production
- Try to eat grains or legumes that are relatively unprocessed with every meal
- Limit your intake of refined starchy foods
- Limit or avoid fast food
- Avoid sugary drinks, such as sodas and fruit juices
Always talk to your healthcare team about the supplements that are right for you, and before taking any supplements, medicines, vitamins or herbs.
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